Dr. T. just called a few minutes ago and told us that Jac's feedings have stopped again. He had been receiving 2 ml per hour since 11 am and around 9 pm they found that he had too much gas and air in his tummy and they decided to stop his feedings until tomorrow.
They took an X-Ray of his belly to make sure there was nothing else going on - and just saw air - so they are not too worried. The CPAP can cause this or just too much food too quickly.
Tomorrow they will restart the continuous feeds and probably lower the rate of milk per hour and see if he tolerates it again.
Dr. T had explained to me very early on that this process of starting and stopping feeds and varying the amounts is very common in preemies and that at some point he will probably just turn a corner and start tolerating all of his feeds and then we make progress towards the 80 ml per day goal for his current weight, which is still hovering around his birth weight of 689 grams.
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Wow- I had not read the updates for a few days- very intense. Amazing what you have learned in the last two weeks about medical science- isn't it. Stay strong. Do not be afraid to advacate for your son. You are an equal part of the medical team that will help to see your son grow. Get your rest. And let yourself cry sometimes- the intensity of the situation has to come out of you somehow.
ReplyDeleteOur thoughts are with you,
Tammy